Sharing your experience can help others like you.
Vascular Cures is inviting vascular patients, advocates, families, and/or caregivers impacted by vascular disease to become our partner in improving vascular health for all. Our “Patients as Partners” program is designed to ensure the patient voice is included everywhere decisions about improving healthcare are being made. Participating in the Patients as Partners program will be based on your schedule and personal interests. There is no set time commitment. You decide how you’d like to participate.
Patients as Partners Interest Form
Some ways that our Partners share their experiences and perspectives to improve vascular healthcare include:
- Taking surveys to share their opinions
- Reviewing educational materials
- Advising researchers on how to design projects to better meet patient needs
- Participating in projects with other non-profits and healthcare organizations
- Sharing their healthcare journey through videos or writing (blogposts, newsletter, etc.)
If you are interested in learning more, we invite you to contact us.
Meet Some of our
Steve is the Chief Marketing Officer for a Commercial Credit Education company. He is a dedicated Oregon Ducks football fan, tennis player, and proud grandfather. Steve is passionate about spreading the word about the importance of walking for patients with Peripheral Artery Disease (PAD).
He was diagnosed with the disease twelve years ago. Steve started having pain in his lower calves that affected his ability to walk. Due to a totally blocked artery in his right leg and a partially occluded main artery in his left leg, his vascular surgeon recommended bypass surgery. Steve discussed his options with another vascular surgeon. He told him, ‘I really can’t improve your quality of life with surgery. What you need to do is start walking.’ Steve started walking regularly. The blood flow in his legs improved enough that he was able to avoid surgery. He continues to walk daily. He sticks to a regular workout routine and gets in a game of doubles tennis three times a week. He balances his exercise with a proper diet and prescribed medications. In addition to serving as a Patient Partner, Steve is a member of the Vascular Cures Advisory Board.
Julie is a member of the Vascular Cures Advisory Board. She is dedicated to encouraging patients to educate themselves about their vascular health conditions. She wants to help others to be better equipped at being their own advocate. Julie is not a typical PAD patient. She started to have claudication symptoms (pain while walking) when she was a teenager. Sadly, her symptoms were ignored by doctors until her mid-forties.
After undergoing several leg bypass surgeries, Julie was finally diagnosed with a new and rare genetic condition called ACDC, or Arterial Calcification due to Deficiency in CD73. Julie is an active mother of three grown children. She continues to hike or bike every day.
Elizabeth worked for a major health insurance company for over 19 years. She is a mother of four with one grandchild. She and her husband are big Texas Ranger baseball fans. They love to fish and take road trips across America. In her 40’s she suffered a cryptogenic stroke and multiple Transient Ischemic Attacks (TIA). Elizabeth was a smoker for 35 years. She learned that the main cause of her health issues was related to her smoking habit and family history of heart disease. She quit smoking and became a passionate advocate for smoking cessation. She started to walk regularly but soon began to experience pain in her calves when walking. Elizabeth was diagnosed with Peripheral Artery Disease (PAD) and Severe Aortoiliac Occlusive Disease, a type of vein condition in the leg. She had immediate bypass surgery to save her legs.
After recovery, Elizabeth became a dedicated patient advocate. She promotes self-education, lifestyle/behavior changes. Elizabeth volunteers for the American Heart Association (AHA). She is also a National Spokeswomen for Go Red.